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Table of Contents
Front Cover
Care at Home for People Living with Dementia: Delaying Institutionalization, Sustaining Families
Copyright information
Table of contents
About the authors
Acknowledgments
Foreword
Preface
1 Studying family care practices
About the study
The book
Developing a different sense of the problem
Note
2 From strategy to service: practices of identification and the work of organizing dementia services
Sociomaterial associations and a 'looming catastrophe'
From private troubles to political strategy
Taking dementia seriously: national dementia strategy documents
Interviewing key informants
A framework for studying relational logics
The sociopolitical context of dementia
Narratives of navigating a 'looming catastrophe'
The ideal programme
Convening for coordinated action on 'navigation'
Extending navigation beyond human actors
Patchwork 1: "We'll make it work, don't worry about it"
Patchwork 2: 'What else are you going to do?'
Discussion: identification, strategy, inclusion
3 How to support care at home? Using film to surface the situated priorities of differently positioned 'stakeholders'
About the film
Ethnographic storytelling as intervention
Processes for the 'film intervention'
Surfacing situated priorities
Reading events in the film: the 'plight' of the caregiver
'Trying to work it into life': marking time versus living 'in' time
Seeing problems of connection
Supporting diverging interests
Acknowledgements
4 Negotiating everyday life with dementia: four families
Understanding: the 'play' of language
Family 1: Colleen and James Miller
Overview
Family 2: Helen and Albert Baker
Overview
Family 3: Ken and Marla Roberts
Overview
Family 4: Katherine and David Cruz, sons Josh and Brent
Overview
5 Relations between formal and family care: divergent practices in care at home for people living with dementia
Ecology of practices as a 'tool for thinking'
Divergent practices
Feeling borders: stories about 'safety'
Practices of 'paying due attention': the Cruz family
Practices of 'paying due attention': the logics of formal care
When divergent practices need each other
The case for diplomacy
6 Patterning dementia
Helen and Albert and the 'beginnings of dementia'
Ken and Marla: 'your patient/my wife'
Colleen and James and being prepared
Interferences and intersections
7 Borders and helpfulness
Ken and Marla: an interest in keeping up appearances
Colleen and James: an interest in being prepared
Katherine, David, Josh and Brent: an interest in maintaining a family as a family
'Addressing people as they belong': a challenge of borders
8 How to sustain a good life with dementia?
'Trying to listen to that which insists'
Care at Home for People Living with Dementia: Delaying Institutionalization, Sustaining Families
Copyright information
Table of contents
About the authors
Acknowledgments
Foreword
Preface
1 Studying family care practices
About the study
The book
Developing a different sense of the problem
Note
2 From strategy to service: practices of identification and the work of organizing dementia services
Sociomaterial associations and a 'looming catastrophe'
From private troubles to political strategy
Taking dementia seriously: national dementia strategy documents
Interviewing key informants
A framework for studying relational logics
The sociopolitical context of dementia
Narratives of navigating a 'looming catastrophe'
The ideal programme
Convening for coordinated action on 'navigation'
Extending navigation beyond human actors
Patchwork 1: "We'll make it work, don't worry about it"
Patchwork 2: 'What else are you going to do?'
Discussion: identification, strategy, inclusion
3 How to support care at home? Using film to surface the situated priorities of differently positioned 'stakeholders'
About the film
Ethnographic storytelling as intervention
Processes for the 'film intervention'
Surfacing situated priorities
Reading events in the film: the 'plight' of the caregiver
'Trying to work it into life': marking time versus living 'in' time
Seeing problems of connection
Supporting diverging interests
Acknowledgements
4 Negotiating everyday life with dementia: four families
Understanding: the 'play' of language
Family 1: Colleen and James Miller
Overview
Family 2: Helen and Albert Baker
Overview
Family 3: Ken and Marla Roberts
Overview
Family 4: Katherine and David Cruz, sons Josh and Brent
Overview
5 Relations between formal and family care: divergent practices in care at home for people living with dementia
Ecology of practices as a 'tool for thinking'
Divergent practices
Feeling borders: stories about 'safety'
Practices of 'paying due attention': the Cruz family
Practices of 'paying due attention': the logics of formal care
When divergent practices need each other
The case for diplomacy
6 Patterning dementia
Helen and Albert and the 'beginnings of dementia'
Ken and Marla: 'your patient/my wife'
Colleen and James and being prepared
Interferences and intersections
7 Borders and helpfulness
Ken and Marla: an interest in keeping up appearances
Colleen and James: an interest in being prepared
Katherine, David, Josh and Brent: an interest in maintaining a family as a family
'Addressing people as they belong': a challenge of borders
8 How to sustain a good life with dementia?
'Trying to listen to that which insists'