@article{1431453,
      recid = {1431453},
      author = {Schües, Christina, and Rehmann-Sutter, Christoph, and  Jürgensen, Martina, and Herzog, Madeleine,},
      title = {Stem cell transplantations between siblings as social  phenomena : the child's body and family decision-making /},
      pages = {1 online resource (vii, 279 pages) :},
      abstract = {This open access book offers insights in short- and  long-term experiences from families with bone marrow  transplantations between minor siblings. It is based on the  first extended qualitative study with 17 families about  experiences with recent transplants and experiences with  transplants up to 20 years in the past. It covers  reflections of donors, recipients and other family members,  as well as family interactions. Transplantation of bone  marrow from one sibling to another who is ill with a blood  cancer (such as Leukemia) is a life-saving therapy. Young  children however are not in a position to give consent  themselves. How should they be adequately included,  depending to their age? Which ethical questions are raised  for the parents both at the time of treatment and  afterwards, and for the medical professionals in clinical  and regulatory contexts? For an in-depth discussion of the  findings the books brings together a group of leading  scholars from the fields of bioethics, family sociology and  philosophy of medicine.},
      url = {http://library.usi.edu/record/1431453},
      doi = {https://doi.org/10.1007/978-3-031-04166-2},
}