001431526 000__ 03936cam\a2200649\i\4500 001431526 001__ 1431526 001431526 003__ OCoLC 001431526 005__ 20230308003240.0 001431526 006__ m\\\\\o\\d\\\\\\\\ 001431526 007__ cr\cn\nnnunnun 001431526 008__ 220915s2022\\\\sz\a\\\\ob\\\\000\0\eng\d 001431526 019__ $$a1343197672 001431526 020__ $$a9783030976064$$q(electronic bk.) 001431526 020__ $$a3030976068$$q(electronic bk.) 001431526 020__ $$z9783030976057 001431526 020__ $$z3030976084 001431526 020__ $$z9783030976088 001431526 020__ $$z303097605X 001431526 0247_ $$a10.1007/978-3-030-97606-4$$2doi 001431526 035__ $$aSP(OCoLC)1344431204 001431526 040__ $$aGW5XE$$beng$$erda$$epn$$cGW5XE$$dYDX$$dOCLCF$$dOCLCQ 001431526 043__ $$ae------ 001431526 049__ $$aISEA 001431526 050_4 $$aRC935.S67 001431526 08204 $$a616.7/3$$223/eng/20220915 001431526 1001_ $$aGarrido Cumbrera, Marco,$$eauthor. 001431526 24510 $$aAxial spondyloarthritis :$$bpatient-reported impact in Europe /$$cMarco Garrido-Cumbrera, Victoria Navarro-Compán, Christine Bundy, Raj Mahapatra, Souzi Makri, Carlos J. Delgado-Domínguez, Pedro Plazuelo-Ramos, Denis Poddubnyy. 001431526 264_1 $$aCham :$$bSpringer,$$c[2022] 001431526 264_4 $$c©2022 001431526 300__ $$a1 online resource (xxi, 109 pages) :$$bcolor illustrations 001431526 336__ $$atext$$btxt$$2rdacontent 001431526 337__ $$acomputer$$bc$$2rdamedia 001431526 338__ $$aonline resource$$bcr$$2rdacarrier 001431526 504__ $$aIncludes bibliographical references. 001431526 5050_ $$aExecutive Summary -- About the Authors -- Introduction -- Objectives.-Methodology -- Demographic Profile of Survey Respondents -- Diagnosis -- Physical Health -- Psychological Health -- Social Support -- Healthcare -- Habits and Lifestyle -- Employment Status and Productivity -- Fears and Hopes -- IMAS European Survey Strengths and Limitations -- Glossary of Terms. 001431526 5060_ $$aOpen access$$5GW5XE 001431526 520__ $$aThis open access book provides an overview of the International Map of Axial Spondyloarthritis (IMAS) project -focusing on Europe-, a wide-ranging, multi-disciplinary collaboration between academic groups, Health Care Professionals (HCPs), patient organizations and Novartis. IMAS was conceived to improve knowledge of Axial Spondyloarthritis (axSpA) and raise awareness of its heavy burden globally. By asking more than 2,000 patients across Europe about the impact of axSpA on multiple aspects of their life, the full extent of this disease was investigated from a direct patient perspective. This allowed a unique understanding of how living with axSpA affects the daily lives and well-being of patients, and how this varies between European countries. Axial Spondyloarthritis: Patient-Reported Impact in Europe highlights opportunities for progressing quality patient care to be applied to health services globally. HCPs, policy makers and patients will find this book to be an indispensable resource for improving the understanding of this chronic condition, including patients’ clinical outcomes, the protection of those at risk of psychological distress, and the economic burden on patients and society. 001431526 588__ $$aOnline resource; title from PDF title page (SpringerLink, viewed September 15, 2022). 001431526 650_0 $$aSpondyloarthropathies. 001431526 650_0 $$aAnkylosing spondylitis. 001431526 650_0 $$aSpondyloarthropathies$$xPatients$$zEurope. 001431526 650_0 $$aAnkylosing spondylitis$$xPatients$$zEurope. 001431526 655_0 $$aElectronic books. 001431526 7001_ $$aNavarro-Compán, Victoria,$$eauthor. 001431526 7001_ $$aBundy, Christine,$$eauthor. 001431526 7001_ $$aMahapatra, Raj,$$eauthor. 001431526 7001_ $$aMakri, Souzi,$$eauthor. 001431526 7001_ $$aDelgado-Domínguez, Carlos J.,$$eauthor. 001431526 7001_ $$aPlazuelo-Ramos, Pedro,$$eauthor. 001431526 7001_ $$aPoddubnyy, Denis,$$eauthor. 001431526 77608 $$iPrint version: $$z3030976084$$z9783030976088$$z303097605X$$z9783030976057$$w(OCoLC)1295380035 001431526 852__ $$bebk 001431526 85640 $$3Springer Nature$$uhttps://link.springer.com/10.1007/978-3-030-97606-4$$zOnline Access$$91397441.2 001431526 909CO $$ooai:library.usi.edu:1431526$$pGLOBAL_SET 001431526 980__ $$aBIB 001431526 980__ $$aEBOOK 001431526 982__ $$aEbook 001431526 983__ $$aOnline 001431526 994__ $$a92$$bISE