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001436325 001__ 1436325
001436325 003__ OCoLC
001436325 005__ 20230309004021.0
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001436325 019__ $$a1249471717
001436325 020__ $$a9783030680206$$q(electronic bk.)
001436325 020__ $$a3030680207$$q(electronic bk.)
001436325 020__ $$z3030680193
001436325 020__ $$z9783030680190
001436325 0247_ $$a10.1007/978-3-030-68020-6$$2doi
001436325 035__ $$aSP(OCoLC)1249505451
001436325 040__ $$aYDX$$beng$$erda$$epn$$cYDX$$dGW5XE$$dEBLCP$$dOCLCO$$dOCLCF$$dTEFOD$$dN$T$$dUKAHL$$dOCLCQ$$dCOM$$dOCLCO$$dOCLCQ
001436325 049__ $$aISEA
001436325 050_4 $$aR727.3
001436325 08204 $$a610.69/6$$223
001436325 24500 $$aShared struggles :$$bstories from parents and pediatricians caring for children with serious illnesses /$$c[edited by] Ann F. Schrooten, Barry P. Markovitz.
001436325 264_1 $$aCham, Switzerland :$$bSpringer/Copernicus,$$c[2021]
001436325 300__ $$a1 online resource (xxii, 260 pages)
001436325 336__ $$atext$$btxt$$2rdacontent
001436325 337__ $$acomputer$$bc$$2rdamedia
001436325 338__ $$aonline resource$$bcr$$2rdacarrier
001436325 500__ $$aIncludes index.
001436325 5050_ $$aI. Compassion -- What Matters At The End -- I Didn't Have To Fix It -- No Wrong Decisions -- Reuniting Families -- Leading With Compassion -- Minute By Minute, Step By Step -- Seek Permission First -- A Sacred Relationship -- Kids Like These -- A Smile Worth Saving -- II. Trust -- Team Harlie -- Best Laid Plans -- If We Are Paying Attention -- Full Disclosure -- The Photograph -- Learning Together -- Altered Path -- The Befores And The Afters -- Not Everyone Is Born A Superhero -- Beyond The Numbers -- Shared Experience -- Tying The Threads Into A Bond -- III. Communication -- A Voice That Doesn't Use Words -- Brave The Difficult Conversation -- A Roadmap -- Teamwork -- Re-Learning To Listen -- Words Matter -- Trust Their Voice -- Knowing Your Family -- Advocacy Is Not Anger -- Where Is The Doctor? -- Failure to Communicate -- When A Patient and Family Forever Change Your World -- Respect: A Two-Way Street -- IV. Hope -- Persistence Of Hope: A Story In Two Acts -- Can I Offer You Advice? -- The Life Of The Party -- Every Single Second Worth It -- Partners In Hope -- Answers For Rosie -- We Treat Souls, Not Just Bodies -- Never Give Up -- The Sliver Of Sky -- The Many Voices of Hope -- Mothers Club -- Glossary.
001436325 506__ $$aAccess limited to authorized users.
001436325 520__ $$aThis book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust. Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat. The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion. In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
001436325 588__ $$aOnline resource; title from PDF title page (SpringerLink, viewed May 14, 2021).
001436325 650_0 $$aPhysician and patient.
001436325 650_0 $$aPediatrics.
001436325 650_0 $$aParents of chronically ill children.
001436325 650_0 $$aEmpathy.
001436325 650_6 $$aRelations médecin-patient.
001436325 650_6 $$aPédiatrie.
001436325 650_6 $$aParents d'enfants malades chroniques.
001436325 650_6 $$aEmpathie.
001436325 655_0 $$aElectronic books.
001436325 7001_ $$aSchrooten, Ann F.,$$eauthor.
001436325 7001_ $$aMarkovitz, Barry P.,$$eeditor.
001436325 77608 $$iPrint version:$$z9783030680190$$w(OCoLC)1227382513
001436325 852__ $$bebk
001436325 85640 $$3Springer Nature$$uhttps://univsouthin.idm.oclc.org/login?url=https://link.springer.com/10.1007/978-3-030-68020-6$$zOnline Access$$91397441.1
001436325 909CO $$ooai:library.usi.edu:1436325$$pGLOBAL_SET
001436325 980__ $$aBIB
001436325 980__ $$aEBOOK
001436325 982__ $$aEbook
001436325 983__ $$aOnline
001436325 994__ $$a92$$bISE