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001447508 001__ 1447508
001447508 003__ OCoLC
001447508 005__ 20230310004121.0
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001447508 008__ 220616t20222022sz\a\\\\ob\\\\001\0\eng\d
001447508 019__ $$a1330196551
001447508 020__ $$a9783030986971$$q(ebook)
001447508 020__ $$a3030986977$$q(ebook)
001447508 020__ $$z9783030986964$$q(hardback)
001447508 0247_ $$a10.1007/978-3-030-98697-1$$2doi
001447508 035__ $$aSP(OCoLC)1330427585
001447508 040__ $$aGW5XE$$beng$$erda$$epn$$cGW5XE$$dYDX$$dOCLCF$$dN$T$$dUIU$$dCOO$$dUKAHL$$dCOO$$dOCLCQ
001447508 049__ $$aISEA
001447508 050_4 $$aR726.8$$b.E531 2022
001447508 08204 $$a616.02/9$$223/eng/20220616
001447508 24500 $$aEnd of life and people with intellectual and developmental disability :$$bcontemporary issues, challenges, experiences and practice /$$cRoger J. Stancliffe, Michele Y. Wiese, Philip McCallion, Mary McCarron, editors.
001447508 264_1 $$aCham, Switzerland :$$bPalgrave Macmillan,$$c[2022]
001447508 264_4 $$c©2022
001447508 300__ $$a1 online resource (xxxiv, 519 pages) :$$billustrations (some color)
001447508 336__ $$atext$$btxt$$2rdacontent
001447508 337__ $$acomputer$$bc$$2rdamedia
001447508 338__ $$aonline resource$$bcr$$2rdacarrier
001447508 504__ $$aIncludes bibliographical references and index.
001447508 50500 $$tCurrent and New Developments in Death, Dying and End-Of-Life Care Policies and Practices /$$rLuc Deliens --$$tExperience of End-of-Life Issues by People with Intellectual Disability /$$rRoger J. Stancliff, Michele Y. Wiese, Philip McCallion, and Mary McCarron --$$tSuicide and Autism : A Lifespan Perspective /$$rDarren Hedley, Susan M. Hayward, Alison Clarke, Mirko Uljarević, and Mark A. Stokes --$$tAdvance Care Planning with and for People who have Intellectual and Developmental Disabilities /$$rJacqueline McGinley and Deborah Waldrop --$$tDecision-Making at the End of Life : Challenges and Opportunities for People with Intellectual and Multiple Disabilities in Residential Homes in Germany /$$rSabine Schäper --$$tHow People with Intellectual Disability are Dying and Implications for Quality Care /$$rJane Bernal, Michele Y. Wiese, and Stuart Todd --$$tLiving and Dying Well with Dementia /$$rMary McCarron, Andrew P. Allen, Niamh Mulryan, Martina Leigh, Louise O'Reilly, Cathy McCarthy, Pamela Dunne, Evelyn Reilly, and Philip McCallion --$$tBuilding shared end-of-life supports and cross-training for hospice/palliative and intellectual disability services providers /$$rLisa A. Ferretti, Mary McCarron, and Philip McCallion --$$tSupporting People with Intellectual Disability at End of Life : Moral Distress among Staff Caregivers During COVID-19 /$$rMary McCarron, Kathyan Kelly, Philip McCallion, Éilish Burke, Margaret Haigh, and Andrew Wormald --$$tAccessible Funerals and People with Intellectual Disability /$$rRachel Forrester-Jones, Philip McCallion, Mary McCarron, Roger J. Stancliffe, and Michele Y. Wiese --$$tEnd-of-Life Doulas and People Living with Intellectual and Developmental Disability /$$rCarolyn Ellison --$$tPalliative and End-of-Life Care for Children with Intellectual Disabilities /$$rCarmel Doyle and Claire Quinn --$$tEnd-of-life Issues and Support Needs of People with Profound Intellectual and Multiple Disability /$$rHille Voss, Joanne Watson, and Melissa J. Bloomer --$$tThe Process of Dying /$$rKaren Ryan --$$tUse of Do-Not-Resuscitate Orders /$$rPhilip McCallion, Lisa A. Ferretti, and Mary McCarron --$$tPositioning the Issues : An Agenda for Future End-of-life Research, Policy and Practice /$$rMchele Y. Wiese, Roger J. Stancliffe, Philip McCallion, and Mary McCarron --$$tEnd-of Life Resources /$$rMichele Y. Wiese.
001447508 506__ $$aAccess limited to authorized users.
001447508 520__ $$a"This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services.The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning"--$$cProvided by the publisher.
001447508 588__ $$aOnline resource; title from PDF title page (SpringerLink, viewed June 16, 2022).
001447508 650_0 $$aTerminal care.
001447508 650_0 $$aPalliative treatment.
001447508 650_0 $$aPeople with mental disabilities$$xDeath.
001447508 650_0 $$aPeople with mental disabilities$$xCare.
001447508 655_0 $$aElectronic books.
001447508 7001_ $$aStancliffe, Roger,$$eeditor.
001447508 7001_ $$aWiese, Michele Y.,$$eeditor.
001447508 7001_ $$aMcCallion, Philip,$$eeditor.
001447508 7001_ $$aMcCarron, Mary,$$eeditor.
001447508 77608 $$iPrint version:$$tEnd of life and people with intellectual and developmental disability.$$dCham : Palgrave Macmillan, Springer Nature Switzerland, [2022]$$z9783030986964$$w(OCoLC)1350415905
001447508 852__ $$bebk
001447508 85640 $$3Springer Nature$$uhttps://univsouthin.idm.oclc.org/login?url=https://link.springer.com/10.1007/978-3-030-98697-1$$zOnline Access$$91397441.1
001447508 909CO $$ooai:library.usi.edu:1447508$$pGLOBAL_SET
001447508 980__ $$aBIB
001447508 980__ $$aEBOOK
001447508 982__ $$aEbook
001447508 983__ $$aOnline
001447508 994__ $$a92$$bISE