001447572 000__ 04837cam\a2200493\a\4500
001447572 001__ 1447572
001447572 003__ OCoLC
001447572 005__ 20230310004124.0
001447572 006__ m\\\\\o\\d\\\\\\\\
001447572 007__ cr\un\nnnunnun
001447572 008__ 220625s2022\\\\sz\\\\\\o\\\\\001\0\eng\d
001447572 019__ $$a1330406314
001447572 020__ $$a9783031049354$$q(electronic bk.)
001447572 020__ $$a3031049357$$q(electronic bk.)
001447572 020__ $$z9783031049347
001447572 020__ $$z3031049349
001447572 0247_ $$a10.1007/978-3-031-04935-4$$2doi
001447572 035__ $$aSP(OCoLC)1330933584
001447572 040__ $$aEBLCP$$beng$$epn$$cEBLCP$$dGW5XE$$dYDX$$dEBLCP$$dOCLCF$$dN$T$$dOCLCQ$$dUKAHL$$dOCLCQ
001447572 049__ $$aISEA
001447572 050_4 $$aRC71
001447572 08204 $$a616.07/5$$223/eng/20220629
001447572 24500 $$aDiagnoses without names :$$bchallenges for medical care, research, and policy /$$cMichael D. Lockshin, Mary K. Crow, Medha Barbhaiya, editors.
001447572 260__ $$aCham :$$bSpringer,$$c2022.
001447572 300__ $$a1 online resource (230 pages)
001447572 336__ $$atext$$btxt$$2rdacontent
001447572 337__ $$acomputer$$bc$$2rdamedia
001447572 338__ $$aonline resource$$bcr$$2rdacarrier
001447572 5050_ $$aPart I -- What is a diagnosis -- 1. Chasing My Cure: Lessons learned from my rare illness -- 2. A Pragmatic Approach to Diagnostic Categorization -- 3. How diagnoses are assigned -- 4. Toward Molecular Diagnoses for Autoimmune Rheumatic Diseases -- Part II -- Purposes of diagnosis -- 5. Diagnostic Uncertainty in Drug Development -- 6. Confronting the Inevitability of Diagnostic Uncertainty Across Multiple Legal Domains -- 7. The FDA and the Drug Development Process -- Part III -- Assigning diagnoses -- 8. Diagnosis of Systemic Lupus Erythematosus in the Age of Precision Medicine -- 9. The Impact of Antinuclear Antibody Testing on the Naming and Misnaming of Disease -- 10. In the Box or Out of the Box -- 11. Ever Evolving Disease Classification Criteria for Clinical Trials and Studies: The Case of Systemic Lupus Erythematosus -- 12. Prognosis: A framework for clinical practice when patients have symptoms with no diagnosis -- 13. When the Illness Has No Name: Focus on Clinical Trials in Systemic Lupus Erythematosus -- 14. The Epidemiology of Systemic Lupus Erythematosus -- Part IV -- Uncertainty -- 15. Managing and tolerating diagnostic uncertainty -- 16. Is there a textbook for non-textbook patients? -- 17. The Changing Role Of Uncertainty In Physician-Patient Relationships -- 18. Syndromes in Search of a Name: Disorders of Consciousness, Neuroethics & Nosological Humility -- 19. Reflections on the Conference by a Physician-Patient -- 20. Clinical Ambiguity in the Intelligent Machine Era (Treats Breaks and Discharges) -- 21. Shame, Name, Give Up the Game? Three Approaches to Uncertainty.
001447572 506__ $$aAccess limited to authorized users.
001447572 520__ $$aDoctors, patients, investigators, administrators, and policymakers who assign diagnoses assume three elements: the name describes an entity with conceptual or evidentiary boundaries, the person setting the name has a high degree of certainty, and the name has a consensus definition. This book challenges this practice and offers an alternative to assigning diagnoses: quantitating diagnostic uncertainty in personal and public medical plans. This book offers the stakeholders' views participating in a workshop, sponsored by the Barbara Volcker Center/Hospital for Special Surgery, taking place in April 2020, about uncertain diagnoses. Chapters examine the circumstances in which diagnosis names are "unassignable", either because patients do not fit within diagnostic "boxes" or because health abnormalities evolve and change over time. In addition, the book deconstructs the processes of diagnosis and explores how different stakeholders used diagnosis names for various purposes. In examining pertinent questions, the book offers a roadmap to achieving consensus definitions or including measures of uncertainty in personal care, research, and policy. Diagnoses Without Names: Challenges for Medical Care, Research, and Policy is an essential resource for physicians and related professionals, residents, fellows, and graduate students in internal medicine, rheumatology, and clinical immunology as well as investigators, administrators, policymakers.
001447572 588__ $$aOnline resource; title from PDF title page (SpringerLink, viewed June 29, 2022).
001447572 650_0 $$aDiagnosis.
001447572 655_0 $$aElectronic books.
001447572 7001_ $$aLockshin, Michael,$$d1937-
001447572 7001_ $$aCrow, Mary K.
001447572 7001_ $$aBarbhaiya, Medha.
001447572 77608 $$iPrint version:$$aLockshin, Michael D.$$tDiagnoses Without Names.$$dCham : Springer International Publishing AG, ©2022$$z9783031049347
001447572 852__ $$bebk
001447572 85640 $$3Springer Nature$$uhttps://univsouthin.idm.oclc.org/login?url=https://link.springer.com/10.1007/978-3-031-04935-4$$zOnline Access$$91397441.1
001447572 909CO $$ooai:library.usi.edu:1447572$$pGLOBAL_SET
001447572 980__ $$aBIB
001447572 980__ $$aEBOOK
001447572 982__ $$aEbook
001447572 983__ $$aOnline
001447572 994__ $$a92$$bISE