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001449516 001__ 1449516
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001449516 020__ $$a9783031075513$$q(electronic bk.)
001449516 020__ $$a303107551X$$q(electronic bk.)
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001449516 0247_ $$a10.1007/978-3-031-07551-3$$2doi
001449516 035__ $$aSP(OCoLC)1344424410
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001449516 049__ $$aISEA
001449516 050_4 $$aRC337
001449516 08204 $$a616.89/072$$223/eng/20220927
001449516 1001_ $$aRose, Diana Susan.
001449516 24510 $$aMad knowledges and user-led research /$$cDiana Susan Rose.
001449516 260__ $$aCham, Switzerland :$$bPalgrave Macmillan,$$c2022.
001449516 300__ $$a1 online resource
001449516 336__ $$atext$$2rdacontent
001449516 336__ $$astill image$$2rdacontent
001449516 337__ $$acomputer$$2rdamedia
001449516 338__ $$aonline resource$$2rdacarrier
001449516 4901_ $$aThe politics of mental health and illness
001449516 504__ $$aIncludes bibliographical references and index.
001449516 5050_ $$aIntro -- Prologue -- A Note on Terminology -- Who Are 'the Mad'? -- Who Am I? -- References -- Acknowledgements -- Praise for Mad Knowledges and User-Led Research -- Contents -- Abbreviations -- Part I: Setting the Scene -- 1: What Does Madness Articulate? -- Background -- When Madness Begins to Speak What Does 'It' Say? -- Mobilising as Speaking Back? -- Non-uniformity -- Who Speaks? -- The Underground -- The Field -- The 'Mainstreams' of Survivor Voices-Psychiatry -- The Academy and 'Psy' Research -- Speaking Back to Austerity -- Conclusion -- References -- Unclassified References
001449516 5058_ $$a2: Mental Challenges as Constitutive of Marginalisation? -- Background -- Collectives -- The Clinical Encounter -- Out of the Hospital -- Can Communities be Developed? -- Psychiatric Facilities and Policies as Obstacles to Forming Groups -- Survivors as a 'Marginalised Community' -- Counter-Narratives from the Mainstream -- Activism -- What Is to be Done? -- Conclusion -- References -- Part II: User Involvement in Research-England as a Case Study -- 3: History of Patient and Public Involvement in England -- Background and Summary -- Language and Representation -- Who Is the Public?
001449516 5058_ $$aCan I Apply? -- What Is 'Meaningful' Involvement? -- Power -- Changes in Structures -- Research by 'Lay' People Outside Official Structures -- Hidden from PPI-Lay Research -- Conclusion -- References -- 4: Research and Practice or What About the Wild? -- The Problems -- Scope -- Impact: The Beginning -- The Question of 'Impact' in Involvement Activities -- What Is Meant by the Term 'Impact'? Two Approaches -- Evidence-Based Medicine (EbM) -- Science and Technology Studies -- Survivor Research and Change -- The Fundamental Difference -- Where Does Madness Sit in the PPI Terrain?
001449516 5058_ $$aBack to 'Impact' -- What Happens When PPI Happens? -- The Secret of Process -- Process Evaluations -- Going Beyond PPI -- Conclusion -- References -- 5: Working with Others and 'Coproduction' -- Background -- Does Everybody Agree? -- Addressing the Field -- Relevant Themes -- Settings, Partners and Mental Health -- Historical Aspects of Coproduction -- Examples of Coproduction? -- The Costs of Coproduction? -- Partners and Allies -- Power Again -- Conclusion -- References -- Part III: Foundational Categories and User-Led Research
001449516 5058_ $$a6: Experience as a Foundation of Knowledge-Making: What's in a Name? -- Background -- Process -- Naming -- Terminology, Identity and 'Who Counts' -- Lived Experience -- Disability Under Erasure -- From Soft to Strong and Back Again -- Survivordom -- A Third Way? -- Implications of Names -- Experts and How Should We Talk to Them? -- The Move to Lived Experience -- Activism and Knowledge-Making -- Conclusion -- References -- 7: Experience: What's in a Foundational Category? -- Background -- Examples from the Literature -- Whose Experiences Does Research Need? -- Mental Health Specifically
001449516 506__ $$aAccess limited to authorized users.
001449516 520__ $$aThis book presents a critical examination of the development of user involvement within research, and investigates the issues currently preventing a productive integration of Mad knowledges within research and practice. Drawing on social, linguistic and critical theories, it proposes the conditions needed to address the development of Mad epistemologies. The authors unique approach deliberately highlights her own positionality and draws on decades of experience as a service recipient, survivor, activist and researcher to illustrate the structural and symbolic barriers faced. Employing concepts including epistemic injustice, individualization, normalization and structural violence, it suggests a radically new way of articulating whats the matter with us? In doing so, the book itself goes some way towards enacting the radical challenge to academic and epistemic hierarchies which, it is argued, will be required to further advance mad knowledges and user-led research. Crucially, it demonstrates how this approach can be both methodologically and conceptually rigorous. This novel work holds important insights for students and scholars across the humanities and social sciences; particularly those working in the areas of critical psychology, disability studies, Mad studies, feminist studies, critical race theory, and Queer theory. Diana Susan Rose retired in 2020 and is now Distinguished Honorary Professor at the Australian National University. She has had two academic careers, interspersed with a period of living in the community having been retired from her first position on mental health grounds. She pioneered user-focused research in a London NGO and subsequently worked at Kings College London where she became Professor of User-Led Research in 2013. Her previous works include This is Survivor Research (2009 co-edited with Peter Beresford, Alison Faulkner, Angela Sweeney, and Mary Nettle).
001449516 588__ $$aDescription based on print version record.
001449516 650_0 $$aPsychiatry$$xResearch.
001449516 650_0 $$aKnowledge, Theory of.
001449516 650_0 $$aResearch$$xMethodology.
001449516 655_0 $$aElectronic books.
001449516 77608 $$iPrint version: $$z3031075501$$z9783031075506$$w(OCoLC)1313385742
001449516 77608 $$iPrint version:$$aRose, Diana Susan, author.$$tMad knowledges and user-led research$$z9783031075506$$w(OCoLC)1338685162
001449516 830_0 $$aPolitics of mental health and illness.
001449516 852__ $$bebk
001449516 85640 $$3Springer Nature$$uhttps://univsouthin.idm.oclc.org/login?url=https://link.springer.com/10.1007/978-3-031-07551-3$$zOnline Access$$91397441.1
001449516 909CO $$ooai:library.usi.edu:1449516$$pGLOBAL_SET
001449516 980__ $$aBIB
001449516 980__ $$aEBOOK
001449516 982__ $$aEbook
001449516 983__ $$aOnline
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