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Table of Contents
Intro
Forward
Contents
Caregiving and Caregivers: Concepts, Caregiving Models, and Systems
1 Introduction
2 The Concept of Caregiving
3 What Is an Informal Caregiver or a Family Caregiver?
4 The Scale of Caregiving
5 The Financial Impact of Caregiving
6 Informal Caregiving During the COVID-19 Pandemic
7 Family Caregiving Models
8 Tasks Performed by Informal Caregivers
9 Conclusion
References
Caregiving Burden and Other Psychosocial Considerations
1 Introduction
2 Cancer Caregivership Burden
2.1 Physical and Sleep Burden
2.2 Psychosocial and Spiritual Burden
2.3 Financial Burden and Caregiver Guilt
2.4 Long-Term and Quality-of-Life-Related Burden
2.5 Bereavement Burden
3 Interventions for the Management of Caregivers' Burden
3.1 Good Examples
3.2 eHealth Options
3.3 Policy Action Needed
4 Conclusion and Outlook
References
Caregiving Within the Context of Elder Care
1 Introduction
2 Origins of Global Aging
2.1 Extension of Life Expectancy
2.2 The "Baby Boomer" Generation
2.3 The "Silver Tsunami"
3 Prominent Themes in Elder Caregiving
3.1 Caregiver Burden
3.2 Co-morbidity
3.3 Problematic Healthcare Navigation
3.4 Ageism
3.4.1 Choosing Geriatrics as a Specialty
4 Major Illnesses in the Elderly
4.1 Cancer
4.1.1 Distinguishing Characteristics
4.1.2 Themes in Elder Cancer Caregiving
Fear
New Caregiving Expectations
4.2 Dementia
4.2.1 Caregiver Characteristics
4.2.2 Emotional Sequelae
4.3 Heart Failure
4.3.1 The Female Caregiver Imperative
4.3.2 Demands Over Time
4.4 Stroke
5 10 Intervention Caveats and Advocacy Targets
6 Elder Caregiving Research
7 The Healthy Aging Agenda
8 Conclusion
References
Informal Caregivers in Care Efficiency
1 Introduction
2 The Concept of Efficiency
3 Efficiency in the Context of Cancer
4 Informal Caregivers as Means of Efficiency
4.1 Putting Patients at the Centre of the Care...and Delivering Care That Really Matters to Patients
4.2 Efficient Cancer Care Delivers the Best Possible Health Outcomes (e.g. Continuation of Care)
4.3 Efficient Cancer Care... with a Focus on What Really Matters to (Patients) and Society
5 Conclusion
References
Caring for the Informal Carer: Coping in Caregiving
1 Introduction
2 Caring for the Carer: A Comprehensive Approach
3 Start by Carrying out a Holistic Carers Assessment
4 Self-Care for the Carer
5 Coping Strategies
5.1 Maximizing the Positives and Minimizing the Negatives
5.2 Information Seeking and Provision, Accepting Help from Others
5.3 Planning Ahead
6 Conclusion
References
Informal Caregivers and Health Literacy
1 Introducing Health Literacy and eHealth Literacy
1.1 eHealth Literacy
2 Health Literacy Levels Among Informal Caregivers
Forward
Contents
Caregiving and Caregivers: Concepts, Caregiving Models, and Systems
1 Introduction
2 The Concept of Caregiving
3 What Is an Informal Caregiver or a Family Caregiver?
4 The Scale of Caregiving
5 The Financial Impact of Caregiving
6 Informal Caregiving During the COVID-19 Pandemic
7 Family Caregiving Models
8 Tasks Performed by Informal Caregivers
9 Conclusion
References
Caregiving Burden and Other Psychosocial Considerations
1 Introduction
2 Cancer Caregivership Burden
2.1 Physical and Sleep Burden
2.2 Psychosocial and Spiritual Burden
2.3 Financial Burden and Caregiver Guilt
2.4 Long-Term and Quality-of-Life-Related Burden
2.5 Bereavement Burden
3 Interventions for the Management of Caregivers' Burden
3.1 Good Examples
3.2 eHealth Options
3.3 Policy Action Needed
4 Conclusion and Outlook
References
Caregiving Within the Context of Elder Care
1 Introduction
2 Origins of Global Aging
2.1 Extension of Life Expectancy
2.2 The "Baby Boomer" Generation
2.3 The "Silver Tsunami"
3 Prominent Themes in Elder Caregiving
3.1 Caregiver Burden
3.2 Co-morbidity
3.3 Problematic Healthcare Navigation
3.4 Ageism
3.4.1 Choosing Geriatrics as a Specialty
4 Major Illnesses in the Elderly
4.1 Cancer
4.1.1 Distinguishing Characteristics
4.1.2 Themes in Elder Cancer Caregiving
Fear
New Caregiving Expectations
4.2 Dementia
4.2.1 Caregiver Characteristics
4.2.2 Emotional Sequelae
4.3 Heart Failure
4.3.1 The Female Caregiver Imperative
4.3.2 Demands Over Time
4.4 Stroke
5 10 Intervention Caveats and Advocacy Targets
6 Elder Caregiving Research
7 The Healthy Aging Agenda
8 Conclusion
References
Informal Caregivers in Care Efficiency
1 Introduction
2 The Concept of Efficiency
3 Efficiency in the Context of Cancer
4 Informal Caregivers as Means of Efficiency
4.1 Putting Patients at the Centre of the Care...and Delivering Care That Really Matters to Patients
4.2 Efficient Cancer Care Delivers the Best Possible Health Outcomes (e.g. Continuation of Care)
4.3 Efficient Cancer Care... with a Focus on What Really Matters to (Patients) and Society
5 Conclusion
References
Caring for the Informal Carer: Coping in Caregiving
1 Introduction
2 Caring for the Carer: A Comprehensive Approach
3 Start by Carrying out a Holistic Carers Assessment
4 Self-Care for the Carer
5 Coping Strategies
5.1 Maximizing the Positives and Minimizing the Negatives
5.2 Information Seeking and Provision, Accepting Help from Others
5.3 Planning Ahead
6 Conclusion
References
Informal Caregivers and Health Literacy
1 Introducing Health Literacy and eHealth Literacy
1.1 eHealth Literacy
2 Health Literacy Levels Among Informal Caregivers