001476341 000__ 05060cam\\22007457i\4500 001476341 001__ 1476341 001476341 003__ OCoLC 001476341 005__ 20231003174644.0 001476341 006__ m\\\\\o\\d\\\\\\\\ 001476341 007__ cr\cn\nnnunnun 001476341 008__ 230915s2023\\\\sz\\\\\\o\\\\\000\0\eng\d 001476341 019__ $$a1396181350$$a1396698421$$a1396910732$$a1397711436 001476341 020__ $$a9783031272233$$q(electronic bk.) 001476341 020__ $$a3031272234$$q(electronic bk.) 001476341 020__ $$z3031272226 001476341 020__ $$z9783031272226 001476341 0247_ $$a10.1007/978-3-031-27223-3$$2doi 001476341 035__ $$aSP(OCoLC)1397331480 001476341 040__ $$aGW5XE$$beng$$erda$$epn$$cGW5XE$$dYDX$$dSFB$$dEBLCP$$dOCLCO 001476341 049__ $$aISEA 001476341 050_4 $$aRC521 001476341 08204 $$a616.8/31$$223/eng/20230915 001476341 24500 $$aChallenging assumptions around dementia :$$buser-led research and untold stories /$$cRosalie Ashworth [and more]. 001476341 264_1 $$aCham, Switzerland :$$bPalgrave Macmillan,$$c2023. 001476341 300__ $$a1 online resource (170 pages) 001476341 336__ $$atext$$btxt$$2rdacontent 001476341 337__ $$acomputer$$bc$$2rdamedia 001476341 338__ $$aonline resource$$bcr$$2rdacarrier 001476341 5050_ $$a1. Coproducing a book on dementia research -- 2. Taking part in Alzheimers disease research -- 3. Taking part in Vascular dementia research -- 4. Taking part in Fronto-Temporal dementia research -- 5. Taking part in Parkinsons dementia research -- 6. Taking part in dementia with lewy bodies research -- 7. Taking part in PCA dementia research -- 8. Lessons for future research in dementia. 001476341 5060_ $$aOpen access.$$5GW5XE 001476341 520__ $$aThis open access book explores the expectations surrounding dementia, what it looks like and how people have been treated by others. It aims to raise awareness of the different types of dementia, and how they impact the brain, body, and lived experience, including experience of Alzheimers disease, Vascular Dementia, Posterior Cortical Atrophy, Frontotemporal Dementia, Semantic Dementia, and Lewy Body Dementia. The co-authors reflect on their experience with informal and formal care, before finishing with a focus on the spectrum of dementia research from clinical trials to user-led research. Throughout the book, co-authors have shared personal stories of how dementia has affected them and people with lived experience of dementia share what they wish people knew about living with the disease. Co-produced by people with lived experience of dementia, academics and health care professionals, this book is an accessible resource about dementia from the perspective of people actively involved in the field and essential reading for healthcare professionals wishing to learn more about the experience of this neuroprogressive condition, as well as policymakers, and members of the public. Dr Rosie Ashworth leads Partners in Research for NRS Neuroprogressive and Dementia Network, UK. As a research psychologist, Rosie is passionate about co-production, ethics, and actively involving people with lived experience in research. She is also the co-lead for ENRICH Scotlands Patient and Public Involvement group RICH (Research in Care Homes) Voices, a Fellow with Advanced Higher Education, an advisor to the Dementia Enquirers, and a volunteer for About Dementia. Partners in Research co-authors including Agnes Houston, Chris Maddocks, David Ross, Fred S. Wilson, Masood Qureshi, Martin Robertson, Myra Lamont, Stuart Hay, Sue Fyvel, Willy Gilder, Winnie Henry, and Alyson Hill. 001476341 588__ $$aDescription based on print version record. 001476341 650_0 $$aDementia$$vCase studies. 001476341 650_0 $$aDementia$$xResearch. 001476341 650_6 $$aDémence$$vÉtudes de cas. 001476341 650_6 $$aDémence$$xRecherche. 001476341 655_0 $$aElectronic books. 001476341 7001_ $$aAshworth, Rosalie,$$eauthor. 001476341 7001_ $$aFyvel, Sue,$$eauthor. 001476341 7001_ $$aHill, Alyson,$$eauthor. 001476341 7001_ $$aMaddocks, Chris,$$eauthor. 001476341 7001_ $$aQureshi, Masood,$$eauthor. 001476341 7001_ $$aRoss, David,$$eauthor. 001476341 7001_ $$aHay, Stuart,$$eauthor. 001476341 7001_ $$aRobertson, Martin,$$eauthor. 001476341 7001_ $$aGilder, Willy,$$eauthor. 001476341 7001_ $$aHenry, Winnie,$$eauthor. 001476341 7001_ $$aLamont, Myra,$$eauthor. 001476341 7001_ $$aHouston, Agnes,$$eauthor. 001476341 7001_ $$aWilson, Fred S.$$eauthor. 001476341 77608 $$iPrint version:$$aASHWORTH, ROSALIE.$$tCHALLENGING ASSUMPTIONS AROUND DEMENTIA.$$d[Place of publication not identified] : PALGRAVE MACMILLAN, 2023$$z3031272226$$w(OCoLC)1366085390 001476341 852__ $$bebk 001476341 85640 $$3Springer Nature$$uhttps://link.springer.com/10.1007/978-3-031-27223-3$$zOnline Access$$91397441.2 001476341 909CO $$ooai:library.usi.edu:1476341$$pGLOBAL_SET 001476341 980__ $$aBIB 001476341 980__ $$aEBOOK 001476341 982__ $$aEbook 001476341 983__ $$aOnline 001476341 994__ $$a92$$bISE