000211966 000__ 03423pam\a2200385\a\4500 000211966 001__ 211966 000211966 005__ 20210513085112.0 000211966 008__ 990210s1997\\\\ctua\\\\\b\\\\001\0\eng\\ 000211966 010__ $$a 97028439 000211966 015__ $$aGB98-40603 000211966 020__ $$a0300072511 (alk. paper) 000211966 035__ $$a(OCoLC)ocm37281664 000211966 035__ $$a211966 000211966 040__ $$aDLC$$cDLC$$dC#P$$dCUM$$dNLM$$dUKM 000211966 049__ $$aISEA 000211966 05000 $$aRB155$$b.G398 1997 000211966 08200 $$a323.44/8$$221 000211966 24500 $$aGenetic secrets :$$bprotecting privacy and confidentiality in the genetic era /$$cedited by Mark A. Rothstein. 000211966 260__ $$aNew Haven :$$bYale University Press,$$cc1997. 000211966 300__ $$axvi, 511 p. :$$bill. ;$$c24 cm. 000211966 504__ $$aIncludes bibliographical references and index. 000211966 5050_ $$aI. Background. Genes, genomes, and society / Leroy Hood and Lee Rowen -- Genetic privacy : emerging concepts and values / Anita L. Allen -- Genetic exceptionalism and "future diaries" : is genetic information different from other medical information? / Thomas H. Murray. II. The health care setting. Genetic privacy in the patient-physician relationship / David Orentlicher -- A clinical geneticist perspective of the patient-physician relationship / Eugene Pergament -- Privacy in genetic counseling / Barbara Bowles Biesecker -- Informed consent and genetic research / Ellen Wright Clayton -- Genetic screening from a public health perspective : some lessons from the HIV experience / Scott Burris and Lawrence O. Gostin. III. The effect of new technology. Confidentiality, collective resources, and commercial genomics / Robert Mullan Cook-Deegan -- Biomarkers--scientific advances and societal implications / Paul W. Brandt-Rauf and Sherry I. Brandt-Rauf -- Environmental population screening / Jonathan M. Samet and Linda A. Bailey -- Are developments in forensic applications of DNA technology consistent with privacy protections? / Randall S. Murch and Bruce Budowle -- DNA data banks / Jean E. McEwen. 000211966 5050_ $$aIV. Nonmedical uses of genetic information. Gen-etiquette : genetic information, family relationships, and adoption / Lori B. Andrews -- The law of medical and genetic privacy in the workplace / Mark A. Rothstein -- The implications of genetic testing for health and life insurance / Nancy E. Kass -- Genetic information in schools / Laura F. Rothstein -- Courts and the challenges of adjudicating genetic testing's secrets / Franklin M. Zweig, Joseph T. Walsh, and Daniel M. Freeman. V. Ethics and law in the United States and abroad. Justice and genetics : privacy protection and the moral basis of public policy / Madison Powers -- Laws to regulate the use of genetic information / Philip R. Reilly -- European data protection law and medical privacy / Paul M. Schwartz -- International and comparative concepts of privacy / Sonia Le Bris and Bartha Maria Knoppers. VI. Recommendations. Genetic secrets : a policy framework / Mark A. Rothstein. 000211966 650_0 $$aMedical genetics$$xMoral and ethical aspects. 000211966 650_0 $$aMedical genetics$$xLaw and legislation. 000211966 650_0 $$aMedical records$$xLaw and legislation. 000211966 650_0 $$aPrivacy, Right of. 000211966 650_0 $$aConfidential communications$$xPhysicians. 000211966 650_0 $$aMedical records$$xAccess control. 000211966 65012 $$aGenetics, Medical. 000211966 65022 $$aGenetics, Medical$$vlegislation. 000211966 65022 $$aGenetic Screening. 000211966 65022 $$aConfidentiality. 000211966 65022 $$aMedical Records. 000211966 7001_ $$aRothstein, Mark A. 000211966 85200 $$bgen$$hRB155$$i.G398$$i1997 000211966 909CO $$ooai:library.usi.edu:211966$$pGLOBAL_SET 000211966 980__ $$aBIB 000211966 980__ $$aBOOK