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000351831 010__ $$z  2009018067
000351831 019__ $$a646868709
000351831 020__ $$a9780511632440 (electronic bk.)
000351831 020__ $$z9780521509916
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000351831 05014 $$aRB155.65$$b.G68 2009eb
000351831 24504 $$aThe governance of genetic information$$h[electronic resource] :$$bwho decides? /$$cedited by Heather Widdows, Caroline Mullen.
000351831 260__ $$aCambridge, UK ;$$aNew York :$$bCambridge University Press,$$c2009.
000351831 300__ $$a1 online resource (xi, 235 p.)
000351831 440_0 $$aCambridge law, medicine, and ethics.
000351831 500__ $$aDescription based on print version record.
000351831 504__ $$aIncludes bibliographical references.
000351831 50500 $$tThe medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Søren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches / $r Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.
000351831 506__ $$aAccess limited to authorized users.
000351831 5201_ $$a"This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance."--BOOK JACKET.
000351831 650_0 $$aGenetic screening$$xMoral and ethical aspects.
000351831 650_0 $$aGenetic screening$$xGovernment policy.
000351831 650_0 $$aPrivacy, Right of.
000351831 650_0 $$aMedical records$$xAccess control.
000351831 655_0 $$aElectronic books.
000351831 7001_ $$aWiddows, Heather,$$d1972-
000351831 7001_ $$aMullen, Caroline.
000351831 77608 $$iPrint version:$$tGovernance of genetic information.$$dCambridge, UK ; New York : Cambridge University Press, 2009$$z9780521509916$$w(DLC) 2009018067$$w(OCoLC)318871873
000351831 8520_ $$bacq
000351831 85280 $$bebk$$hProquest Ebook Central
000351831 85640 $$3ProQuest Ebook Central$$uhttps://univsouthin.idm.oclc.org/login?url=https://ebookcentral.proquest.com/lib/usiricelib-ebooks/detail.action?docID=461094$$zOnline Access
000351831 909CO $$ooai:library.usi.edu:351831$$pGLOBAL_SET
000351831 980__ $$aEBOOK
000351831 980__ $$aBIB
000351831 982__ $$aEbook
000351831 983__ $$aOnline