@article{438020,
      recid = {438020},
      author = {Grob, Rachel,},
      title = {Testing baby the transformation of newborn screening,  parenting, and policy making / [electronic resource] :},
      publisher = {Rutgers University Press,},
      address = {New Brunswick, NJ :},
      pages = {1 online resource (xi, 272 p.)},
      year = {2011},
      abstract = {Within forty-eight hours after birth, the heel of every  baby in the United States has been pricked and the blood  sent for compulsory screening to detect or rule out a large  number of disorders. Newborn screening is expanding  rapidly, fueled by the prospect of saving lives. Yet many  lives are also changed by it in ways not yet recognized.  Testing Baby  is the first book to draw on parents'  experiences with newborn screening in order to examine its  far-reaching sociological consequences. Rachel Grob's  cautionary tale also explores the powerful ways that  parents' narratives have shaped this emotionally charged  policy arena. Newborn screening occurs almost always  without parents' consent and often without their knowledge  or understanding, yet it has the power to alter such things  as family dynamics at the household level, the context of  parenting, the way we manage disease identity, and how  parents' interests are understood and solicited in policy  debates.},
      url = {http://library.usi.edu/record/438020},
}