000438020 000__ 03007cam\a2200421Ia\4500 000438020 001__ 438020 000438020 005__ 20210513152806.0 000438020 006__ m\\\\\o\\d\\\\\\\\ 000438020 007__ cr\cn\nnnunnun 000438020 008__ 120525s2011\\\\nju\\\\\ob\\\s001\0\eng\d 000438020 010__ $$z 2010049959 000438020 020__ $$a9780813552026$$q(electronic book) 000438020 020__ $$z0813551358 000438020 020__ $$z0813551366 000438020 020__ $$z9780813551357 000438020 020__ $$z9780813551364 000438020 035__ $$a(OCoLC)ocn785782340 000438020 035__ $$a(CaPaEBR)ebr10533628 000438020 035__ $$a(MiAaPQ)EBC858961 000438020 040__ $$aCaPaEBR$$cCaPaEBR 000438020 05014 $$aRJ255.5$$b.G76 2011eb 000438020 08204 $$a362.198/9201$$222 000438020 1001_ $$aGrob, Rachel,$$d1966- 000438020 24510 $$aTesting baby$$h[electronic resource] :$$bthe transformation of newborn screening, parenting, and policy making /$$cRachel Grob. 000438020 260__ $$aNew Brunswick, NJ :$$bRutgers University Press,$$cc2011. 000438020 300__ $$a1 online resource (xi, 272 p.) 000438020 440_0 $$aCritical issues in health and medicine 000438020 504__ $$aIncludes bibliographical references and index. 000438020 5050_ $$aSaving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents' encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : visible in a single drop of blood? 000438020 506__ $$aAccess limited to authorized users. 000438020 520__ $$aWithin forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized. Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob's cautionary tale also explores the powerful ways that parents' narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. 000438020 588__ $$aDescription based on print version record. 000438020 650_0 $$aNewborn infants$$xDiseases$$xDiagnosis. 000438020 650_0 $$aMedical screening. 000438020 77608 $$iPrint version:$$aGrob, Rachel, 1966-$$tTesting baby.$$dNew Brunswick, N.J. : Rutgers University Press, 2011$$z9780813551357$$z9780813551364$$w(DLC) 2010049959$$w(OCoLC)685111265 000438020 8520_ $$bacq 000438020 85280 $$bebk$$hProQuest Ebook Central 000438020 85640 $$3ProQuest Ebook Central$$uhttps://univsouthin.idm.oclc.org/login?url=https://ebookcentral.proquest.com/lib/usiricelib-ebooks/detail.action?docID=858961$$zOnline Access 000438020 909CO $$ooai:library.usi.edu:438020$$pGLOBAL_SET 000438020 980__ $$aEBOOK 000438020 980__ $$aBIB 000438020 982__ $$aEbook 000438020 983__ $$aOnline