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000729686 010__ $$z  2011011621
000729686 020__ $$z9780195390384$$qhardcover
000729686 020__ $$a9780199909742$$qelectronic book
000729686 035__ $$a(CaPaEBR)ebr10520364
000729686 035__ $$a(OCoLC)774293836
000729686 040__ $$aCaPaEBR$$cCaPaEBR
000729686 05014 $$aQH438.7$$b.A26 2011eb
000729686 08204 $$a174.2/96042$$222
000729686 24500 $$aAchieving justice in genomic translation$$h[electronic resource] :$$bre-thinking the pathway to benefit /$$cedited by Wylie Burke ... [et al.].
000729686 260__ $$aOxford ;$$aNew York :$$bOxford University Press,$$c2011.
000729686 300__ $$a1 online resource (x, 212 p.)
000729686 504__ $$aIncludes bibliographical references and index.
000729686 5050_ $$aAchieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.
000729686 506__ $$aAccess limited to authorized users.
000729686 650_0 $$aHuman genetics$$xResearch$$xMoral and ethical aspects.
000729686 650_0 $$aGenomics$$xResearch$$xMoral and ethical aspects.
000729686 650_0 $$aGenetic screening$$xMoral and ethical aspects.
000729686 7001_ $$aBurke, Wylie.
000729686 85280 $$bebk$$hEbrary Academic Complete
000729686 85640 $$3ProQuest Ebook Central Academic Complete$$uhttps://univsouthin.idm.oclc.org/login?url=http://site.ebrary.com/lib/usiricelib/Doc?id=10520364$$zOnline Access
000729686 909CO $$ooai:library.usi.edu:729686$$pGLOBAL_SET
000729686 980__ $$aEBOOK
000729686 980__ $$aBIB
000729686 982__ $$aEbook
000729686 983__ $$aOnline