The bleeding disease [electronic resource] : hemophilia and the unintended consequences of medical progress / Stephen Pemberton.

Introduction : hemophilia as pathology of progress
The emergence of the hemophilia concept
The scientist, the bleeder, and the laboratory
Vital factors in the making of a masculine world
Normality within limits
The hemophiliac's passport to freedom
Autonomy and other imperatives of the health consumer
The mismanagement of hemophilia and AIDS
Conclusion : the governance of clinical progress in a global age.