000752096 000__ 05912cam\a2200529Ii\4500 000752096 001__ 752096 000752096 005__ 20230306141355.0 000752096 006__ m\\\\\o\\d\\\\\\\\ 000752096 007__ cr\cn\nnnunnun 000752096 008__ 151009s2016\\\\ne\\\\\\ob\\\\000\0\eng\d 000752096 019__ $$a924634154$$a932333659 000752096 020__ $$a9789401773607$$q(electronic book) 000752096 020__ $$a9401773602$$q(electronic book) 000752096 020__ $$z9789401773591 000752096 020__ $$z9401773599 000752096 035__ $$aSP(OCoLC)ocn923250564 000752096 035__ $$aSP(OCoLC)923250564$$z(OCoLC)924634154$$z(OCoLC)932333659 000752096 040__ $$aN$T$$beng$$erda$$epn$$cN$T$$dN$T$$dIDEBK$$dOCLCF$$dYDXCP$$dEBLCP$$dCDX$$dSNK 000752096 049__ $$aISEA 000752096 050_4 $$aRJ47.8 000752096 08204 $$a174.2/9892$$223 000752096 24500 $$aEthical dilemmas for critically ill babies$$h[electronic resource] /$$cEduard Verhagen, Annie Janvier, editors. 000752096 264_1 $$aDordrecht :$$bSpringer,$$c[2016] 000752096 300__ $$a1 online resource. 000752096 336__ $$atext$$btxt$$2rdacontent 000752096 337__ $$acomputer$$bc$$2rdamedia 000752096 338__ $$aonline resource$$bcr$$2rdacarrier 000752096 4901_ $$aInternational library of ethics, law, and the new medicine ;$$vv. 65 000752096 504__ $$aIncludes bibliographical references. 000752096 5050_ $$aAcknowledgments; Contents; 1 Introduction; Abstract; References; 2 How Babies Die and Why This Is Important to Clinicians, Researchers, and Parents; Abstract; 2.1 Values, Policies, and Facts About Survival; 2.2 Outcome and Unit Philosophy; 2.3 Description of Circumstances Around the End-of-Life; References; 3 When Do We Become a Person and Why Should It Matter to Pediatricians?; Abstract; 3.1 Conception; 3.2 Pain; 3.3 Viability; 3.4 Sentience and Consciousness; 3.5 Birth; 3.6 Human Relationships; 3.7 Unique Human Characteristics; References; 4 Neonates Are Devalued Compared to Older Patients 000752096 5058_ $$aAbstract4.1 Pain Treatment; 4.2 Nursery Environment; 4.3 Variations of Practice for Neonates; 4.4 Resuscitation and End of Life Decisions; 4.5 Economic Analysis of NICUs Compared to Other ICUs; 4.6 Neonatal Mortality in Poor Countries; 4.7 Why Are These Differential Considerations Tolerated for Neonates?; 4.8 Conclusion; References; 5 Who Makes It to the NICU? The Association Between Prenatal Decisions and Neonatal Outcomes; Abstract; 5.1 How Babies Die Outside of the NICU; 5.1.1 Late Terminations of Pregnancy; 5.1.2 Stillbirths; 5.1.3 Unsuccessful Resuscitations 000752096 5058_ $$a5.1.4 Neonates Who Receive Palliative Care at Birth5.2 Telling the Values from the Facts; 5.3 Conclusion; References; 6 Termination of Pregnancy and Perinatal Palliative Care in the Case of Fetal Anomaly: Why Is There so Much Incoherence?; Abstract; 6.1 The Fetus as a Patient; 6.2 Abortion; 6.3 The Challenge of Coherence Between Pre and Postnatal Periods; 6.4 In Practice; 6.5 Different Practice -- Different Views; 6.6 Parental Outcomes; 6.7 Could Perinatal Palliative Care Be an Alternative to a Late Interruption of Pregnancy for Fetal Anomaly? 000752096 5058_ $$a6.8 Why Is Postnatal Palliative Care so Far from Termination of Pregnancy?References; 7 Predicting Outcomes in the Very Preterm Infant; Abstract; 7.1 What Do We Want to Predict?; 7.2 Predicting Outcomes Before Birth, Lack of Prediction by Gestational Age; 7.3 Predicting Outcomes in the Delivery Room, Lack of Prediction by Condition at Birth; 7.4 Predicting Outcomes by Early Ultrasound Findings; 7.5 Predicting Outcome by Clinical Course; 7.6 Predicting Outcomes by Other Modalities of Investigation; 7.7 Predicting Outcomes Near to Discharge; 7.8 Which Test Should Be Used as a Screening Test? 000752096 5058_ $$a7.9 Can We Predict Adverse Long Term Outcomes, Should We, and Which Ones?7.10 Predicting Quality of Life; 7.11 Conclusion; References; 8 Predicting the Future of Preterm Infants: Should We Use Quality of Life and Social Determinants Criteria?; Abstract; 8.1 Predicting Quality of Life; 8.2 Outcome and Socio-Economic Factors; References; 9 End-of-Life Decisions in Neonatology from a Children's Rights Perspective: Dutch Developments Examined; Abstract; 9.1 Introduction; 9.2 End-of-Life Decisions in Neonatolgy: A Children's Rights Issue; 9.3 Dutch Legal Framework; 9.4 Dutch Research 000752096 506__ $$aAccess limited to authorized users. 000752096 520__ $$aMost neonates who now survive intensive care would have died 50 years ago, and ℓ́ℓnatureℓ́ℓ would have decided the outcomes, making ethical discussions about initiating or withholding resuscitation irrelevant. Medical developments in neonatology have changed the way we respond to diseases of neonates, to their illness, and to their parents. Not only as physicians, but also as a society. Decisions on when to start, withhold, or withdraw life-saving interventions in critically ill neonates are among the most difficult decisions in pediatric practice. These decisions are fraught with ethical dilemmas, for example deciding whether withholding intensive care ℓ́ℓleading to death- is superior to uncertain survival with a risk of disability and the additional burden of intensive care. This book covers important ethical questions℗ℓthat arise in℗ℓneonatal intensive care units.℗ℓQuestions such as, whether to intervene medically and whether we are good at predicting the outcome of fragile neonates; whether a medical intervention should be withheld or withdrawn, and who should be primarily responsible for these decisions and how? 000752096 650_0 $$aPediatrics$$xMoral and ethical aspects. 000752096 650_0 $$aPediatrics$$xDecision making. 000752096 650_0 $$aNewborn infants$$xDiseases. 000752096 7001_ $$aVerhagen, Eduard,$$eeditor. 000752096 7001_ $$aJanvier, Annie,$$eeditor. 000752096 77608 $$iPrint version:$$z9401773599$$z9789401773591$$w(OCoLC)913767695 000752096 830_0 $$aInternational library of ethics, law, and the new medicine ;$$vv. 65. 000752096 852__ $$bebk 000752096 85640 $$3SpringerLink$$uhttps://univsouthin.idm.oclc.org/login?url=http://link.springer.com/10.1007/978-94-017-7360-7$$zOnline Access$$91397441.1 000752096 909CO $$ooai:library.usi.edu:752096$$pGLOBAL_SET 000752096 980__ $$aEBOOK 000752096 980__ $$aBIB 000752096 982__ $$aEbook 000752096 983__ $$aOnline 000752096 994__ $$a92$$bISE