Informed consent in predictive genetic testing : a revised model / Jessica Minor.
Minor, Jessica, author.
2015
RB155.65 .M45 2015eb
Available Online

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Title Informed consent in predictive genetic testing : a revised model / Jessica Minor.
Author Minor, Jessica, author.
ISBN 9783319174167 (electronic book)
3319174169 (electronic book)
9783319174150
DOI https://doi.org/10.1007/978-3-319-17416-7
Published Cham : Springer, 2015.
Copyright ©2015
Language English
Description 1 online resource.
Item Number 10.1007/978-3-319-17416-7 doi
Call Number RB155.65 .M45 2015eb
Dewey Decimal Classification 616/.042
Summary This important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and case studies showing the new model in real-world applications add extra usefulness to this resource. Included in the coverage: The science behind PGT. Understanding genetic risks and probability. The history of informed consent. Revised model of informed consent: comprehension, disclosure, voluntariness, patient safety. Applications of the model in DTC and pleiotropic genetic testing. Implementation of the revised model, and assessing its effectiveness. A milestone in the bioethics literature, Informed Consent in Predictive Genetic Testing will be of considerable interest to genetic counselors, medical and bioethicists, and public health professionals.
Bibliography, etc. Note Includes bibliographical references and index.
Access Note Access limited to authorized users.
Source of Description Online resource; title from PDF title page (viewed June 19, 2015).
Available in Other Form Print version: 9783319174150
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Record Appears in Online Resources > Ebooks
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Introduction
Predictive Genetic Testing
The History and Components of Informed Consent
Revised Model of Informed Consent
Application of the Revised Model
Conclusion.

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