@article{760673,
      recid = {760673},
      author = {Minor, Jessica,},
      title = {Informed consent in predictive genetic testing : a revised  model /},
      pages = {1 online resource.},
      abstract = {This important book proposes revising the current informed  consent protocol for predictive genetic testing to reflect  the trend toward patient-centered medicine. Emphasizing the  predictive aspect of testing, the author analyzes the state  of informed consent procedure in terms of three components:  comprehension of risk assessment, disclosure to select  appropriate treatment, and voluntariness. The book's  revised model revisits these cornerstones, restructuring  the consent process to allow for expanded comprehension  time, enhanced patient safety, greater patient involvement  and autonomy, and reduced chance of coercion by family or  others. A comparison of the current and revised versions  and case studies showing the new model in real-world  applications add extra usefulness to this resource.  Included in the coverage: The science behind PGT.  Understanding genetic risks and probability. The history of  informed consent. Revised model of informed consent:  comprehension, disclosure, voluntariness, patient safety.  Applications of the model in DTC and pleiotropic genetic  testing. Implementation of the revised model, and assessing  its effectiveness. A milestone in the bioethics literature,  Informed Consent in Predictive Genetic Testing will be of  considerable interest to genetic counselors, medical and  bioethicists, and public health professionals.},
      url = {http://library.usi.edu/record/760673},
      doi = {https://doi.org/10.1007/978-3-319-17416-7},
}