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Table of Contents
Preface; Contents; About the Author; 1 Mapping the Terrain: Examining Discourses on Disability and the Family; Abstract; 1.1 Introducing the Book; 1.2 Defining Disability; 1.3 Perspectives on Disability: The Impaired Body and the Disabling Society; 1.3.1 Disability and the Medical Model; 1.3.2 Disability and Social Stigma; 1.3.3 Emergence of the Social Model; 1.3.4 Disability and Embodiment; 1.4 Perspectives on Intellectual/Mental Disabilities; 1.4.1 Intellectual Disability and Culture; 1.5 Disability and the Family: Changing Discourses and Practices; 1.5.1 Disability and the Family in India.
1.6 The History of Autism: Evolution of a Category1.6.1 Kanner and Asperger: Foundational Insights; 1.6.2 Psychoanalytical Perspective: Refrigerator Mothers and Damaged Children; 1.6.3 Re(de)fining the Category; 1.7 Autism in a Cross-Cultural Perspective; 1.7.1 Autism in India; 1.8 Overview of the Book; References; 2 "There Is Something Wrong with My Child": Encounter with Autism; Abstract; 2.1 Symptom Recognition and Atypical Development; 2.2 Diagnosis Stories: Seeking Answers; 2.3 Dealing with Diagnosis: From Despair to 'Acceptance'; 2.4 Case Studies.
2.5 Making Sense of the Disability: Cultural Models of Disability2.6 Multiple Meanings of Autism; 2.6.1 Discussion: Contradictory Constructions of a Complex Condition; 2.7 Autism and Everyday Life: Accounts of Family Routines; 2.7.1 Divya and Her Family: Sharing Roles and Responsibilities; 2.7.2 Aashu and His Family: Engagement and Inclusion; 2.7.3 Discussion: Constructing Disability Through Everyday Practices; References; 3 Unending Care and an Uncertain Future: The Challenges of Parenting a Child with Autism; Abstract; 3.1 The Challenges of Parenting a Child with Autism.
3.2 Perspectives on Motherhood3.3 Experiences from Fieldwork; 3.4 Mothering as Ideology and Practice; 3.5 Entrapment and Empowerment: Experiences of Motherhood; 3.5.1 Discussion: Disability, Personhood and Gender; 3.6 Fatherhood and Disability: Encounters and Experiences; 3.6.1 Discussion: Patriarchy, Technology, Globalization; 3.7 The Impact of Disability on the Marital Relationship; References; 4 Shrinking Circles of Support: The Urban Family in Transition; Abstract; 4.1 Sibling Relations and Disability: Key Themes.
4.1.1 'Someone to Call One's Own': The Importance of Siblings in the Life of a Child with Disability4.1.2 Making Sense of the Sibling's Disability; 4.1.3 The 'Burden of Competence'; 4.1.4 Supporting Siblings; 4.2 The Experiences of Grandparents; 4.2.1 Responses of Grandparents: An Overview; 4.2.2 Findings from Fieldwork; 4.3 Responses of the Extended Family: Support and Stigma; 4.4 Family, Neighbourhood and Community; References; 5 Disability, Society and State: New Mobilizations and Movements; Abstract; 5.1 The Social World of Disability: Mobilizations in the Urban Space.
1.6 The History of Autism: Evolution of a Category1.6.1 Kanner and Asperger: Foundational Insights; 1.6.2 Psychoanalytical Perspective: Refrigerator Mothers and Damaged Children; 1.6.3 Re(de)fining the Category; 1.7 Autism in a Cross-Cultural Perspective; 1.7.1 Autism in India; 1.8 Overview of the Book; References; 2 "There Is Something Wrong with My Child": Encounter with Autism; Abstract; 2.1 Symptom Recognition and Atypical Development; 2.2 Diagnosis Stories: Seeking Answers; 2.3 Dealing with Diagnosis: From Despair to 'Acceptance'; 2.4 Case Studies.
2.5 Making Sense of the Disability: Cultural Models of Disability2.6 Multiple Meanings of Autism; 2.6.1 Discussion: Contradictory Constructions of a Complex Condition; 2.7 Autism and Everyday Life: Accounts of Family Routines; 2.7.1 Divya and Her Family: Sharing Roles and Responsibilities; 2.7.2 Aashu and His Family: Engagement and Inclusion; 2.7.3 Discussion: Constructing Disability Through Everyday Practices; References; 3 Unending Care and an Uncertain Future: The Challenges of Parenting a Child with Autism; Abstract; 3.1 The Challenges of Parenting a Child with Autism.
3.2 Perspectives on Motherhood3.3 Experiences from Fieldwork; 3.4 Mothering as Ideology and Practice; 3.5 Entrapment and Empowerment: Experiences of Motherhood; 3.5.1 Discussion: Disability, Personhood and Gender; 3.6 Fatherhood and Disability: Encounters and Experiences; 3.6.1 Discussion: Patriarchy, Technology, Globalization; 3.7 The Impact of Disability on the Marital Relationship; References; 4 Shrinking Circles of Support: The Urban Family in Transition; Abstract; 4.1 Sibling Relations and Disability: Key Themes.
4.1.1 'Someone to Call One's Own': The Importance of Siblings in the Life of a Child with Disability4.1.2 Making Sense of the Sibling's Disability; 4.1.3 The 'Burden of Competence'; 4.1.4 Supporting Siblings; 4.2 The Experiences of Grandparents; 4.2.1 Responses of Grandparents: An Overview; 4.2.2 Findings from Fieldwork; 4.3 Responses of the Extended Family: Support and Stigma; 4.4 Family, Neighbourhood and Community; References; 5 Disability, Society and State: New Mobilizations and Movements; Abstract; 5.1 The Social World of Disability: Mobilizations in the Urban Space.