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Table of Contents
Intro; Preface; Contents; Contributors; Part I: Introduction; 1: Introduction: Historical Perspectives, Current Priorities, and Healthcare Transition Processes, Evidence, and Measurement; Health-Care Transition in the United States; Historical Perspectives and Current National Organization Priorities; Current Health-Care Transition Priorities and National Professional HCT Efforts; Snapshot of Chronic Conditions in Adolescents and Young Adults in Transition; Health-Care Transition Needs of Youth and Young Adults
The Six Core Elements of HCT Quality Improvement Process and Evidence for Structured HCT InterventionsHealth-Care Transition Process and Outcome Measurement; Health-Care Transition Interventions and Models of Care; References; Part II: The Adolescent and Young Adult: A Developmental Perspective; 2: The Anatomical, Hormonal and Neurochemical Changes that Occur During Brain Development in Adolescents and Young Adults; Anatomical, Hormonal and Neurochemical Changes; Cortical Grey Matter; Sub-Cortical Grey Matter; White Matter; Pubertal Hormones; Neurotransmitters; Summary; References
3: The Relationships of Adolescent Behaviours to Adolescent Brain Changes and their Relevance to the Transition of Adolescents and Young Adults with Chronic Illness and DisabilityIntroduction; Possible Links Between Adolescent Behaviour and Brain Changes; Risk-Taking and Novelty Seeking; Social Behaviour; Sleep; Relevance to Healthcare and Transition of Adolescents and Young Adults with Chronic Illness and Disability; Conclusion to Chaps. 2 and 3; References; Part III: Personal and Professional Perspectives on Healthcare Transition; 4: Healthcare Transition from the AYASHCN's Perspective
When an Illness Is Life-LimitingHCT as a Normative Event; Promoting Autonomy in Disease Management by Family and Health-Care Providers; The Role of Parents; The Role of Peers/Support Groups; Promoting Self-Efficacy with Treatments; Advice for Parents; School; Promoting Self-Advocacy; Readiness to Transition; Addressing Mental Health, Substance Use, and Reproductive Health Issues; Finding an Adult Provider; Terminating the Relationship with the Pediatrician; References; 5: Healthcare Transition from the Family Perspective; Hearing About Health Care Transition (HCT); Why HCT Is Important
Special Considerations for AYASHCN with Cognitive DelayTransition Planning in a Clinical Setting; Promoting Self-Efficacy; Technology; Promoting Self-Advocacy; The Role of Parents in Preparing for HCT; Finding an Adult Provider; Parents' Recommendations; Terminating the Relationship with the Pediatrician; References; 6: Healthcare Transition from the Pediatric Provider's Perspective; Barriers Encountered by Healthcare Providers; Lack of Training; Lack of Structure for HCT Planning; Service Reimbursement; AYASHCN and Family Reluctance to Transfer Care
The Six Core Elements of HCT Quality Improvement Process and Evidence for Structured HCT InterventionsHealth-Care Transition Process and Outcome Measurement; Health-Care Transition Interventions and Models of Care; References; Part II: The Adolescent and Young Adult: A Developmental Perspective; 2: The Anatomical, Hormonal and Neurochemical Changes that Occur During Brain Development in Adolescents and Young Adults; Anatomical, Hormonal and Neurochemical Changes; Cortical Grey Matter; Sub-Cortical Grey Matter; White Matter; Pubertal Hormones; Neurotransmitters; Summary; References
3: The Relationships of Adolescent Behaviours to Adolescent Brain Changes and their Relevance to the Transition of Adolescents and Young Adults with Chronic Illness and DisabilityIntroduction; Possible Links Between Adolescent Behaviour and Brain Changes; Risk-Taking and Novelty Seeking; Social Behaviour; Sleep; Relevance to Healthcare and Transition of Adolescents and Young Adults with Chronic Illness and Disability; Conclusion to Chaps. 2 and 3; References; Part III: Personal and Professional Perspectives on Healthcare Transition; 4: Healthcare Transition from the AYASHCN's Perspective
When an Illness Is Life-LimitingHCT as a Normative Event; Promoting Autonomy in Disease Management by Family and Health-Care Providers; The Role of Parents; The Role of Peers/Support Groups; Promoting Self-Efficacy with Treatments; Advice for Parents; School; Promoting Self-Advocacy; Readiness to Transition; Addressing Mental Health, Substance Use, and Reproductive Health Issues; Finding an Adult Provider; Terminating the Relationship with the Pediatrician; References; 5: Healthcare Transition from the Family Perspective; Hearing About Health Care Transition (HCT); Why HCT Is Important
Special Considerations for AYASHCN with Cognitive DelayTransition Planning in a Clinical Setting; Promoting Self-Efficacy; Technology; Promoting Self-Advocacy; The Role of Parents in Preparing for HCT; Finding an Adult Provider; Parents' Recommendations; Terminating the Relationship with the Pediatrician; References; 6: Healthcare Transition from the Pediatric Provider's Perspective; Barriers Encountered by Healthcare Providers; Lack of Training; Lack of Structure for HCT Planning; Service Reimbursement; AYASHCN and Family Reluctance to Transfer Care