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Table of Contents
Intro; Contents; Contributors; 1: Introduction: What Do Patients Worry About?; Introduction; Why Does Everything Have to Change, and Why Can't I Keep My Old Doctor?; Why? Because We Have to; Who Is in My New Team?; What Will Happen if It Goes Wrong?; Can I Be Normal?; Conquering the Complexities of Family, Sex, and Fertility; Family; Sex and Fertility; Summary; References; 2: History of Adolescent Care in Urology; Introduction; The Past; The Development of Adolescent Urology and Transition; Measuring Outcomes; References; 3: Adolescence: An Overview; Introduction; Epidemiology
Developmental Tasks of AdolescencePhysical Development; Brain Development; Cognitive and Behavioural Development; Emotional and Social Development; Communicating with Adolescents; Health Problems in Adolescence; Safeguarding Adolescents; Legal and Ethical Issues; What Are the Rules Around Confidentiality?; Transition; In Summary; References; 4: Metrics and Guidelines; Overview; Transition: The Period Between Two Inconsistently Defined Times; The Challenge of Guidelines and Metrics for Transition; Guidelines; NICE Guidance; Elements of NICE Guidance
Cross-Cutting Metrics for Transition: Making the Important MeasurableDisease-Specific Metrics; Planning for Services; Commissioning; Conclusion; References; 5: Information Transfer; Introduction; Patient Role; Health Passport; Hospital Record; Data Protection; Geography; Summary; Further Reading; 6: Managing the Parents; Introduction; Engaging and Educating the Parents Through the Transition; Helping Parents Manage Boundaries with Their Adolescent; Recognizing When and How Parents Should Be Excluded; Maximizing the Confidentiality of the Adolescent Through the Parents; Conclusion; References
7: The Importance of the Specialist Nurse Role as Part of the Lifelong Care of Congenital ConditionsIntroduction; Transition; The Key Worker Role; The CNS Role; The CNS Role in Facilitating and Supporting Transition; The Practicalities of Establishing the CNS Role Within a Transition Service; Scoping Existing Pathways and Services and Understanding Issues Around Transition; Understanding Patient and Parent Concerns and Priorities; Identifying Necessary Skills and Training and Education Needs for the CNS; Identifying Key Performance Indicators
Agreeing New Clinical Pathways and Developing Patient InformationSecuring Permanent Funding; Management and Accountability; Education and Training and Qualifications; Conclusion; References; 8: Barriers to Transition; Pediatric Team; Adult Urology Team; Young Adult; Family; Facilitating Successful Transition; Summary; References; 9: Developmentally Appropriate Adolescent Health Care: An Essential Prerequisite for Positive Transition Experiences; Introduction; Approaches and Interventions to Support the Provision of DAH; Developing Confidence in Self-Management and Healthcare Self-Efficacy
Developmental Tasks of AdolescencePhysical Development; Brain Development; Cognitive and Behavioural Development; Emotional and Social Development; Communicating with Adolescents; Health Problems in Adolescence; Safeguarding Adolescents; Legal and Ethical Issues; What Are the Rules Around Confidentiality?; Transition; In Summary; References; 4: Metrics and Guidelines; Overview; Transition: The Period Between Two Inconsistently Defined Times; The Challenge of Guidelines and Metrics for Transition; Guidelines; NICE Guidance; Elements of NICE Guidance
Cross-Cutting Metrics for Transition: Making the Important MeasurableDisease-Specific Metrics; Planning for Services; Commissioning; Conclusion; References; 5: Information Transfer; Introduction; Patient Role; Health Passport; Hospital Record; Data Protection; Geography; Summary; Further Reading; 6: Managing the Parents; Introduction; Engaging and Educating the Parents Through the Transition; Helping Parents Manage Boundaries with Their Adolescent; Recognizing When and How Parents Should Be Excluded; Maximizing the Confidentiality of the Adolescent Through the Parents; Conclusion; References
7: The Importance of the Specialist Nurse Role as Part of the Lifelong Care of Congenital ConditionsIntroduction; Transition; The Key Worker Role; The CNS Role; The CNS Role in Facilitating and Supporting Transition; The Practicalities of Establishing the CNS Role Within a Transition Service; Scoping Existing Pathways and Services and Understanding Issues Around Transition; Understanding Patient and Parent Concerns and Priorities; Identifying Necessary Skills and Training and Education Needs for the CNS; Identifying Key Performance Indicators
Agreeing New Clinical Pathways and Developing Patient InformationSecuring Permanent Funding; Management and Accountability; Education and Training and Qualifications; Conclusion; References; 8: Barriers to Transition; Pediatric Team; Adult Urology Team; Young Adult; Family; Facilitating Successful Transition; Summary; References; 9: Developmentally Appropriate Adolescent Health Care: An Essential Prerequisite for Positive Transition Experiences; Introduction; Approaches and Interventions to Support the Provision of DAH; Developing Confidence in Self-Management and Healthcare Self-Efficacy