Governing biobanks [electronic resource] : understanding the interplay between law and practice / Jane Kaye ... [et al.].
Kaye, Jane, 1962-
2012
K3611.H86 G68 2012
Available Online

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Title Governing biobanks [electronic resource] : understanding the interplay between law and practice / Jane Kaye ... [et al.].
ISBN 9781841139050
184113905X
9781847318831 (electronic book)
Publication Details Oxford [England] ; Portland, Or. : Hart Pub., 2012.
Language English
Description x, 370 p.
Call Number K3611.H86 G68 2012
Summary Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.--Back cover.
Bibliography, etc. Note Includes bibliographical references and index.
Access Note Access limited to authorized users.
Added Author Kaye, Jane, 1962-
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Record Appears in Online Resources > Ebooks
All Resources
From an idea to a project / Jane Kaye ... [et al.]
Embedding biobanks in a changing context / Jane Kaye
Mapping the regulatory space / Susan M.C. Gibbons
Dynamic networks of practice / Catherine Heeney
Governance in practice : patterns of awareness and engagement / Susan M.C. Gibbons and Andrew Smart
General attitudes to governance / Susan M.C. Gibbons and Andrew Smart
Attitudes to particular laws and governing bodies / Susan M.C. Gibbons and Andrew Smart
Preferences for governance / Susan M.C. Gibbons and Andrew Smart
Enacting governance : the case of access / Catherine Heeney and Andrew Smart
Reflections on practice and governance / Jane Kaye
Ethics and the governance of biobanks / Catherine Heeney and Michael Parker.

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