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De-sequencing : identity work with genes / Dana Mahr, Martina von Arx, editors.
Mahr, Dana, editor.; Arx, Martina von, editor.
2020
QH447 .D47 2020
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Title
De-sequencing : identity work with genes / Dana Mahr, Martina von Arx, editors.
ISBN
9811577285
9789811577284 (electronic book)
9789811577277 (hbk.)
DOI
https://doi.org/10.1007/978-981-15-7728-4
Published
Basingstoke : Palgrave Macmillan, [2020]
Language
English
Description
1 online resource : illustrations.
Item Number
10.1007/978-981-15-7728-4 doi
Call Number
QH447 .D47 2020
Dewey Decimal Classification
572.8/6
Summary
Are you your genes? De-Sequencing: Identity Work with Genes explores this perplexing question, showing how different forms of knowledge must be contextualized to become meaningful. It is generally assumed that the genomic sequence adds up to the identity-forming material life is made of. Yet identity cannot itself adopt the form of a sequence. As the authors in this volume show, the genome must be de-sequenced by human language to render it interpretable and meaningful in a social context. The book unpacks this type of sequence-speech in engaging detail, adopting a personal, social, cultural, and bio-political approach to examine the transformation of human identity and reflexivity in the era of genetic citizenship.
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Includes bibliographical references.
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Added Author
Mahr, Dana, editor.
Arx, Martina von, editor.
Series
Health, technology, and society.
Available in Other Form
Print version: 9789811577277
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1. Introduction.- Part I Science and Medicine.- 2. Personalised Medicine: Problems of translation into the human domain.- 3. Contemporary Future Parents: From tentative pregnancy and moral pioneers to educated moral gamblers.- Part II Philosophy of Biology.- 4. Developmental narratives.- 5. Epigenetics, responsiveness and embodiment.- 6. Space and time of developmental narratives.- Part III Societal Contexts.- 7. Data mining in systems medicine and the project of solidarity
the interface of genomics and society revisited.- 8. Experimenting with solidarity in biomedicine: from practice to prin-ciple?.- 9. The moral making of data rich personalised medicine.- Part IV Families.- 10. An ordering of letters: my own personal genome.- 11. Illness in the world of the genome.- 12. How personal is the genome? The shadow of genetic predictions.- Part V Individual Experiences.- 13. Lived genome phenomenology. Exploring the genetics of chronic inflammatory bowel diseases.- 14. Existential storytelling in a genomic world.

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