Axial spondyloarthritis : patient-reported impact in Europe / Marco Garrido-Cumbrera, Victoria Navarro-Compán, Christine Bundy, Raj Mahapatra, Souzi Makri, Carlos J. Delgado-Domínguez, Pedro Plazuelo-Ramos, Denis Poddubnyy.
Garrido Cumbrera, Marco, author.; Navarro-Compán, Victoria, author.; Bundy, Christine, author.; Mahapatra, Raj, author.; Makri, Souzi, author.; Delgado-Domínguez, Carlos J., author.; Plazuelo-Ramos, Pedro, author.; Poddubnyy, Denis, author.
2022
RC935.S67
Available Online

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Title
Axial spondyloarthritis : patient-reported impact in Europe / Marco Garrido-Cumbrera, Victoria Navarro-Compán, Christine Bundy, Raj Mahapatra, Souzi Makri, Carlos J. Delgado-Domínguez, Pedro Plazuelo-Ramos, Denis Poddubnyy.
Author
Garrido Cumbrera, Marco, author.
ISBN
9783030976064 (electronic bk.)
3030976068 (electronic bk.)
9783030976057
3030976084
9783030976088
303097605X
DOI
https://doi.org/10.1007/978-3-030-97606-4
Published
Cham : Springer, [2022]
Copyright
©2022
Language
English
Description
1 online resource (xxi, 109 pages) : color illustrations
Item Number
10.1007/978-3-030-97606-4 doi
Call Number
RC935.S67
Dewey Decimal Classification
616.7/3
Summary
This open access book provides an overview of the International Map of Axial Spondyloarthritis (IMAS) project -focusing on Europe-, a wide-ranging, multi-disciplinary collaboration between academic groups, Health Care Professionals (HCPs), patient organizations and Novartis. IMAS was conceived to improve knowledge of Axial Spondyloarthritis (axSpA) and raise awareness of its heavy burden globally. By asking more than 2,000 patients across Europe about the impact of axSpA on multiple aspects of their life, the full extent of this disease was investigated from a direct patient perspective. This allowed a unique understanding of how living with axSpA affects the daily lives and well-being of patients, and how this varies between European countries. Axial Spondyloarthritis: Patient-Reported Impact in Europe highlights opportunities for progressing quality patient care to be applied to health services globally. HCPs, policy makers and patients will find this book to be an indispensable resource for improving the understanding of this chronic condition, including patients’ clinical outcomes, the protection of those at risk of psychological distress, and the economic burden on patients and society.
Bibliography, etc. Note
Includes bibliographical references.
Access Note
Open access
Source of Description
Online resource; title from PDF title page (SpringerLink, viewed September 15, 2022).
Added Author
Navarro-Compán, Victoria, author.
Bundy, Christine, author.
Mahapatra, Raj, author.
Makri, Souzi, author.
Delgado-Domínguez, Carlos J., author.
Plazuelo-Ramos, Pedro, author.
Poddubnyy, Denis, author.
Available in Other Form
Print version: 9783030976057
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Executive Summary
About the Authors
Introduction
Objectives.-Methodology
Demographic Profile of Survey Respondents
Diagnosis
Physical Health
Psychological Health
Social Support
Healthcare
Habits and Lifestyle
Employment Status and Productivity
Fears and Hopes
IMAS European Survey Strengths and Limitations
Glossary of Terms.

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