Challenging assumptions around dementia : user-led research and untold stories / Rosalie Ashworth [and more].
Ashworth, Rosalie, author.; Fyvel, Sue, author.; Hill, Alyson, author.; Maddocks, Chris, author.; Qureshi, Masood, author.; Ross, David, author.; Hay, Stuart, author.; Robertson, Martin, author.; Gilder, Willy, author.; Henry, Winnie, author.; Lamont, Myra, author.; Houston, Agnes, author.; Wilson, Fred S. author.
2023
RC521
Available Online

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Title Challenging assumptions around dementia : user-led research and untold stories / Rosalie Ashworth [and more].
ISBN 9783031272233 (electronic bk.)
3031272234 (electronic bk.)
3031272226
9783031272226
DOI https://doi.org/10.1007/978-3-031-27223-3
Published Cham, Switzerland : Palgrave Macmillan, 2023.
Language English
Description 1 online resource (170 pages)
Item Number 10.1007/978-3-031-27223-3 doi
Call Number RC521
Dewey Decimal Classification 616.8/31
Summary This open access book explores the expectations surrounding dementia, what it looks like and how people have been treated by others. It aims to raise awareness of the different types of dementia, and how they impact the brain, body, and lived experience, including experience of Alzheimers disease, Vascular Dementia, Posterior Cortical Atrophy, Frontotemporal Dementia, Semantic Dementia, and Lewy Body Dementia. The co-authors reflect on their experience with informal and formal care, before finishing with a focus on the spectrum of dementia research from clinical trials to user-led research. Throughout the book, co-authors have shared personal stories of how dementia has affected them and people with lived experience of dementia share what they wish people knew about living with the disease. Co-produced by people with lived experience of dementia, academics and health care professionals, this book is an accessible resource about dementia from the perspective of people actively involved in the field and essential reading for healthcare professionals wishing to learn more about the experience of this neuroprogressive condition, as well as policymakers, and members of the public. Dr Rosie Ashworth leads Partners in Research for NRS Neuroprogressive and Dementia Network, UK. As a research psychologist, Rosie is passionate about co-production, ethics, and actively involving people with lived experience in research. She is also the co-lead for ENRICH Scotlands Patient and Public Involvement group RICH (Research in Care Homes) Voices, a Fellow with Advanced Higher Education, an advisor to the Dementia Enquirers, and a volunteer for About Dementia. Partners in Research co-authors including Agnes Houston, Chris Maddocks, David Ross, Fred S. Wilson, Masood Qureshi, Martin Robertson, Myra Lamont, Stuart Hay, Sue Fyvel, Willy Gilder, Winnie Henry, and Alyson Hill.
Access Note Open access.
Source of Description Description based on print version record.
Added Author Ashworth, Rosalie, author.
Fyvel, Sue, author.
Hill, Alyson, author.
Maddocks, Chris, author.
Qureshi, Masood, author.
Ross, David, author.
Hay, Stuart, author.
Robertson, Martin, author.
Gilder, Willy, author.
Henry, Winnie, author.
Lamont, Myra, author.
Houston, Agnes, author.
Wilson, Fred S. author.
Available in Other Form CHALLENGING ASSUMPTIONS AROUND DEMENTIA.
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1. Coproducing a book on dementia research
2. Taking part in Alzheimers disease research
3. Taking part in Vascular dementia research
4. Taking part in Fronto-Temporal dementia research
5. Taking part in Parkinsons dementia research
6. Taking part in dementia with lewy bodies research
7. Taking part in PCA dementia research
8. Lessons for future research in dementia.

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