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Table of Contents
I. Background. Genes, genomes, and society / Leroy Hood and Lee Rowen
Genetic privacy : emerging concepts and values / Anita L. Allen
Genetic exceptionalism and "future diaries" : is genetic information different from other medical information? / Thomas H. Murray. II. The health care setting. Genetic privacy in the patient-physician relationship / David Orentlicher
A clinical geneticist perspective of the patient-physician relationship / Eugene Pergament
Privacy in genetic counseling / Barbara Bowles Biesecker
Informed consent and genetic research / Ellen Wright Clayton
Genetic screening from a public health perspective : some lessons from the HIV experience / Scott Burris and Lawrence O. Gostin. III. The effect of new technology. Confidentiality, collective resources, and commercial genomics / Robert Mullan Cook-Deegan
Biomarkers
scientific advances and societal implications / Paul W. Brandt-Rauf and Sherry I. Brandt-Rauf
Environmental population screening / Jonathan M. Samet and Linda A. Bailey
Are developments in forensic applications of DNA technology consistent with privacy protections? / Randall S. Murch and Bruce Budowle
DNA data banks / Jean E. McEwen.
IV. Nonmedical uses of genetic information. Gen-etiquette : genetic information, family relationships, and adoption / Lori B. Andrews
The law of medical and genetic privacy in the workplace / Mark A. Rothstein
The implications of genetic testing for health and life insurance / Nancy E. Kass
Genetic information in schools / Laura F. Rothstein
Courts and the challenges of adjudicating genetic testing's secrets / Franklin M. Zweig, Joseph T. Walsh, and Daniel M. Freeman. V. Ethics and law in the United States and abroad. Justice and genetics : privacy protection and the moral basis of public policy / Madison Powers
Laws to regulate the use of genetic information / Philip R. Reilly
European data protection law and medical privacy / Paul M. Schwartz
International and comparative concepts of privacy / Sonia Le Bris and Bartha Maria Knoppers. VI. Recommendations. Genetic secrets : a policy framework / Mark A. Rothstein.
Genetic privacy : emerging concepts and values / Anita L. Allen
Genetic exceptionalism and "future diaries" : is genetic information different from other medical information? / Thomas H. Murray. II. The health care setting. Genetic privacy in the patient-physician relationship / David Orentlicher
A clinical geneticist perspective of the patient-physician relationship / Eugene Pergament
Privacy in genetic counseling / Barbara Bowles Biesecker
Informed consent and genetic research / Ellen Wright Clayton
Genetic screening from a public health perspective : some lessons from the HIV experience / Scott Burris and Lawrence O. Gostin. III. The effect of new technology. Confidentiality, collective resources, and commercial genomics / Robert Mullan Cook-Deegan
Biomarkers
scientific advances and societal implications / Paul W. Brandt-Rauf and Sherry I. Brandt-Rauf
Environmental population screening / Jonathan M. Samet and Linda A. Bailey
Are developments in forensic applications of DNA technology consistent with privacy protections? / Randall S. Murch and Bruce Budowle
DNA data banks / Jean E. McEwen.
IV. Nonmedical uses of genetic information. Gen-etiquette : genetic information, family relationships, and adoption / Lori B. Andrews
The law of medical and genetic privacy in the workplace / Mark A. Rothstein
The implications of genetic testing for health and life insurance / Nancy E. Kass
Genetic information in schools / Laura F. Rothstein
Courts and the challenges of adjudicating genetic testing's secrets / Franklin M. Zweig, Joseph T. Walsh, and Daniel M. Freeman. V. Ethics and law in the United States and abroad. Justice and genetics : privacy protection and the moral basis of public policy / Madison Powers
Laws to regulate the use of genetic information / Philip R. Reilly
European data protection law and medical privacy / Paul M. Schwartz
International and comparative concepts of privacy / Sonia Le Bris and Bartha Maria Knoppers. VI. Recommendations. Genetic secrets : a policy framework / Mark A. Rothstein.