The governance of genetic information [electronic resource] : who decides? / edited by Heather Widdows, Caroline Mullen.
Widdows, Heather, 1972-; Mullen, Caroline.
2009
RB155.65 .G68 2009eb
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Title The governance of genetic information [electronic resource] : who decides? / edited by Heather Widdows, Caroline Mullen.
ISBN 9780511632440 (electronic bk.)
9780521509916
Publication Details Cambridge, UK ; New York : Cambridge University Press, 2009.
Language English
Description 1 online resource (xi, 235 p.)
Call Number RB155.65 .G68 2009eb
Summary "This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance."--BOOK JACKET.
Note Description based on print version record.
Bibliography, etc. Note Includes bibliographical references.
Access Note Access limited to authorized users.
Added Author Widdows, Heather, 1972-
Mullen, Caroline.
Series Cambridge law, medicine, and ethics.
Available in Other Form Governance of genetic information.
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Record Appears in Online Resources > Ebooks
All Resources
The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson
Me, myself, I : against narcissism in the governance of genetic information / Søren Holm
Decisions, consent and expectations of the individual / Caroline Mullen
Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows
Rights, responsibility and stewardship : beyond consent / Roger Brownsword
Who decides what? : relational ethics, genetics and well-being / Sarah Wilson
Involving publics in biobank governance : moving beyond existing approaches / $r Kathryn G. Hunter and Graeme T. Laurie
Genetic information and public opinion / Andrew Edgar
Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.

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