Testing baby [electronic resource] : the transformation of newborn screening, parenting, and policy making / Rachel Grob.
2011
RJ255.5 .G76 2011eb
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Details
Title
Testing baby [electronic resource] : the transformation of newborn screening, parenting, and policy making / Rachel Grob.
Author
Grob, Rachel, 1966-
ISBN
9780813552026 (electronic book)
0813551358
0813551366
9780813551357
9780813551364
0813551358
0813551366
9780813551357
9780813551364
Imprint
New Brunswick, NJ : Rutgers University Press, c2011.
Language
English
Description
1 online resource (xi, 272 p.)
Call Number
RJ255.5 .G76 2011eb
Dewey Decimal Classification
362.198/9201
Summary
Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized. Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob's cautionary tale also explores the powerful ways that parents' narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates.
Bibliography, etc. Note
Includes bibliographical references and index.
Access Note
Access limited to authorized users.
Source of Description
Description based on print version record.
Series
Critical issues in health and medicine
Available in Other Form
Testing baby.
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Table of Contents
Saving babies, changing lives
Diagnostic odysseys, old and new : how newborn screening transforms parents' encounters with disease
Specters in the room : parenting in the shadow of cystic fibrosis
Encounters with expertise : parents and health care professionals
A house on fire : how private experiences ignite public voices
Brave new worlds : visible in a single drop of blood?
Diagnostic odysseys, old and new : how newborn screening transforms parents' encounters with disease
Specters in the room : parenting in the shadow of cystic fibrosis
Encounters with expertise : parents and health care professionals
A house on fire : how private experiences ignite public voices
Brave new worlds : visible in a single drop of blood?